Did you know that over 100 children have medically complex conditions that require palliative care services on any given day, but the city of San Antonio lacks the infrastructure and programs to meet these growing needs?
This lack of pediatric palliative care resources is stifling for a city the size of San Antonio. Palliative care, better defined as "quality of life care," looks at the whole person - body, mind, spirit and even caregivers - when considering treatment.
It says that despite a life limiting or terminal diagnosis a person still has time to LIVE.
Many times, this includes many treatments and services that are typically expensive and not covered by insurance.
At The Gus Owen Stephens Foundation, we believe that no child and family should be denied the care that increases their quality of life, especially when coping with a life-limiting illness.
In 2019, the Gus Owen Stephens Foundation accomplished:
- 3 year fully funded full time Perinatal Palliative Care Coordinator Position at UHS
- Bereavement rooms at UHS (one pediatric and one perinatal). These rooms have already served many families and their medically fragile children
- Grand Rounds continuing education opportunities at CHoSA. The first grand round, centered around advancing efforts in pediatric palliative care hosted 100+ attendees.
- Extended care stays at local hotels and other methods of support for families who cannot afford to take the critical time needed to spend with their medically fragile children during unforeseen hospital stays.
On January 28th, we are hosting the 4th annual Gus Owen Stephens Foundation and we need your support to ensure our efforts go further. You have so generously supported children and families in this community and we would value your support. Please join us in supporting medically fragile children and their families.
Sincerely, Elizabeth and Scott Stephens